I am going to write this section bit by bit as I remember
the things that helped my father.
I have heard that one of the symptoms of PSP is saying
inappropriate things and the inability to display the correct emotion at the
correct time. This was certainly true of my father. I remember him, perhaps a
year or so into the illness, being over friendly to strangers in a way he never
had been before and I remember him at a later stage saying ‘yes’ when he meant ‘no’
and visa versa. By that stage he had lost most of his ability to talk so
offering him a cup of tea for example and knowing whether he actually wanted
one or not was very difficult. It must have been incredibly frustrating and
humiliating for him because he couldn’t express himself and was given things
like the cup of tea simply because we thought he meant ‘yes’ when in fact he
may well have meant ‘no’.
Later on again he was unable to express virtually any
emotion or himself in any way. The one thing he retained was the ability to cry
and this he did whenever he remembered something whether that be something that
reminded him of the second world war (when he was a very small child), his
walks on Dartmoor, or characters from a book he had enjoyed reading. I came to believe
though that his crying was not an expression of grief though but one of happiness
and the only way he could express his memories.
The thing that he most enjoyed when he could no longer walk, talk or express himself was being read to particularly from books he had once read and enjoyed and also things he himself had written. He enjoyed listening to people talk, his grandchildren running around him and remembering the past.
It’s very difficult if the person you are looking after can’t express themselves but we grew to interpret his emotions and we realised that crying isn’t always an expression of grief but sometimes the only way someone can express themselves and I know that memories brought him great joy.
The thing that he most enjoyed when he could no longer walk, talk or express himself was being read to particularly from books he had once read and enjoyed and also things he himself had written. He enjoyed listening to people talk, his grandchildren running around him and remembering the past.
It’s very difficult if the person you are looking after can’t express themselves but we grew to interpret his emotions and we realised that crying isn’t always an expression of grief but sometimes the only way someone can express themselves and I know that memories brought him great joy.
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