The carers

I'm not sure whether or not there is a list of carers available through the PSPA or not, if there is that is a very good thing as the carers we had were very mixed in their ability to care for my Dad. The problem lay in the fact that mostly they hadn't heard of the illness and therefore didn't know how to deal with it or help him. Some assumed he had dementia and therefore didn't provide enough mental stimulation but mostly they didn't know about the backwards falling, the difficulties he had eating or the visual problems. The more that people become aware of PSP the more help carers can give people suffering from it and this is one of the reasons to raise awareness.

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